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rare disease

Posted inNews

‘We took every day as a blessing:’ family continues to fight for advocacy after daughter, 4, dies of rare disease

Avatar photo by Maison Tran Dec 3, 2023

After years of battling GM1 gangliosidosis, Violet Law died at 4 years old on Saturday, Nov. 11, surrounded by her family.

The capitol building in Sacramento, California is visible in the background. A child is in a stroller, and her parents stand smiling on either side of her.
Posted inNews

Family advocates for statewide GM1 Gangliosidosis Awareness Day

Avatar photo by Tess Kazenoff Apr 25, 2023
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